Jane Kendrick, Long Term IBC Survivor

Jane and Terry shared their experiences with inflammatory breast cancer, discussing their diagnoses, treatments, and the support they received during their journeys. They explored the physical and emotional challenges of cancer, including body image issues and the importance of self-advocacy and community support. The conversation also touched on organizations that provide support for breast cancer survivors and the importance of sharing both hopeful and difficult stories to help others in the IBC community.

Transcript

Terry Arnold: Hi! I'm Terry Arnold with talk Ibc. And I have with me what I feel like is a neighbor. I have Jane Henrik with me who lives in Round Rock, which is just a stone's throw from me. And she had posted something on one of our social medias, and I contacted, said, Hey, I would love to know more about you. Would you do a podcast. She said. Yes, and so thank you for being with me here today? Jane.

Jane Kendrick: Oh, well, you're welcome. I'm glad to do it.

Terry Arnold: Well, you know, I was saying I was telling her we're gonna have this on Youtube, but I wish the ones, if you were listening on spotify, could see that she's got this magnificent smile.

Terry Arnold: and Jane was diagnosed quite some time ago, and so talk about a story, I think, is going to give people a lot of hope. I'd love to have you kind of tell the skinny and what happened to you. So in 2,003, what happened.

Jane Kendrick: 2,003, and I got up one morning, and

Jane Kendrick: after I got my shower, I thought, Oh, my breast looks really weird! And I had asked my husband, I said, Does this look right to you? And he said, No, you better go to the doctor. So I called. My gynecologist went to the doctor. He really knew what it was he sent me to a surgeon.

Jane Kendrick: Surgeon walked, we walked in, sat down, the surgeon walked in, looked at me and he said, Oh, you've got cancer, and my husband and I like you haven't even done anything. He hadn't done a biopsy. He hadn't done anything. And he said, it's cancer, he said, I'm 99.9 5%. Sure, it's cancer. And he did the biopsy that was like on a Monday on Friday call and said, yes, it is cancer, and I've got you

Jane Kendrick: lined up with an oncologist. They'll be calling you oncologist called me Friday afternoon

Jane Kendrick: said, We'll see you. Monday morning I got to go to the front of the line, so.

Terry Arnold: Been quite a shock. I mean, you said you were 52 years old.

Terry Arnold: You have no history of family family history, of cancer. What does your breast look like to make you be suspicious?

Jane Kendrick: It was red. Had the what they call the peau d'orange just real

Jane Kendrick: looked like specks all over it. It was hot.

Jane Kendrick: It just. It looked strange. I mean, it just was really strange looking, and that's you know.

Terry Arnold: You know you you had a very similar situation. As to me, you know you woke up one morning it was completely different. But you, but that's where our place parted in the sense that I woke up one morning. It looked completely different, but I went to the doctors. They blew me off. So here you are, in a really small town.

Terry Arnold: and they knew what it was right away back in 2,003. That makes me very happy did they ever use the word inflammatory?

Jane Kendrick: Yes, yes, they did. And and actually my husband and I got online

Jane Kendrick: between Friday and Monday, you know, over the weekend before we saw the oncologist, we were trying to figure out what was going on with me, and the surgeon had told me it was inflammatory breast cancer. So we looked it up, and we were just horrified. You know that I believe at that time the the life expectancy was 18 months.

Jane Kendrick: and.

Terry Arnold: Very much was, and I'm surprised. Honestly, you found anything in 2,003, because I was diagnosed in 2,007, and I was digging to find any information, so I'm sure you didn't.

Jane Kendrick: Yeah, there wasn't a lot. It was more about the polderage that we could find. But one of the 1st things the oncologist told us. Monday was, whatever you do, don't get on the Internet. And we said, too late, we already did, and we're scared.

Terry Arnold: You know I might. I heard the same things, but you know, honestly, I feel like the Internet saved my life because

Terry Arnold: my doctors kept blowing me off. And so I kept going back, and I always joke. But it really is true. When you type in red, hot, swollen breast in your Google search. I got a porn virus on my computer. I had to literally take it in to a place. And I remember I was just mortified. I'm sliding my computer across this young 17 year, old boy, and I'm saying it's got a porn virus. Can you clean it? And I go? I promise I wasn't looking at Porn. I was looking up about breast cancer because I don't.

Terry Arnold: I don't care what you were doing. I'm like so creeped out, but it was so hard to find anything but honestly being on the Internet saved my life. But I also understand why

Terry Arnold: doctors would tell you to shy away from that, because it was a scary message.

Jane Kendrick: Was it was. It was just like, I'm gonna there's no hope, you know. That's what it felt like.

Terry Arnold: Well, that's why, when I got so excited that you commented, I think you comment on something on Facebook. And I wrote you and said, Hey, I don't know you. Can we talk? And then you told me how long we were diagnosed with it, man, there's some serious hope in that. How many years, now? 20.

Jane Kendrick: We need one now.

Terry Arnold: Who.

Jane Kendrick: 21 woohoo

Jane Kendrick: I was. I was considered N. Ed in 2,004. So that's so. I count from there. So it's 21 this year.

Terry Arnold: That's great. So let's talk about what your treatment was like, because you must have felt like you were. 1st of all, I'm sure your friends were

Terry Arnold: a little surprised at this lumpless cancer. I mean, you and I aren't that different age. And we grew up in the mantra of lump early detection. Get your mammogram

Terry Arnold: and none of this fits. So how did you navigate all this.

Jane Kendrick: It. You know what we it all happened so fast that

Jane Kendrick: my husband and I were like robots. We just we just did what everybody said they, you know, the doctor said, Go, do this, go, do this, do this. And we just said, Okay, and we did it. We didn't stop and

Jane Kendrick: question them. We just

Jane Kendrick: followed orders, I mean, because it was so foreign to us. We had no, you know.

Jane Kendrick: no idea we didn't. I guess we really didn't even know we could question anything. We just did what they said. And and that's why I'm here.

Terry Arnold: I kind of get that because I feel sorry for people like you in the sense that it's a shock. There's no time for adjustment. But I also don't want to be like what happened to me where you're misdiagnosed, because by the time I got my diagnosis I was saying, I'm thank you. I'm so grateful because I knew something was wrong. You barely had a chance to even process.

Jane Kendrick: Oh, yeah, I couldn't. It was you couldn't comprehend it, and I was working at the time, and I remember my boss saying.

Jane Kendrick: you you say all of this that's going on with you. And and he said, It's not comprehending. You're just quoting something, you know. It was just, I said the exact same thing every time I've got this this, this they're going to do this, this, this and that was just all I had in my head.

Terry Arnold: Now was there later, that moment that sunk in like crap, almost died.

Jane Kendrick: You know what? When? I did through the 1st chemo? The

Jane Kendrick: No, not erythromycin. What's the the red devil they call

Jane Kendrick: hey? You know what I'm talking.

Terry Arnold: I did A/C. Fec. And taxol.

Jane Kendrick: Okay, I did something to start with, and then they after 4 treatments of that.

Jane Kendrick: Then I started the taxol and another one to.

Jane Kendrick: I can't think that the name of it.

Jane Kendrick: And they had said, When that one can cause anaphylaxis.

Jane Kendrick: And so my husband and I sat down and wrote out a will before that 1st treatment, and that's when it hit me

Jane Kendrick: that I might die.

Jane Kendrick: you know, before you. You know you don't think about. I think about it, even though I was doing treatment. No one had said.

Jane Kendrick: there's this problem, you know. It's just dealing with the what the chemo is doing to your body.

Jane Kendrick: But then, when they said, Okay, this could cause anaphylaxis, and you might die. I was like, Oh, okay.
Jane Kendrick: this is really serious.

Terry Arnold: Yeah.

Jane Kendrick: Problem.

Jane Kendrick: I'm sorry.

Terry Arnold: Adromycin was the word you're trying to. Adramycin was referred to as Red Devil. I had that. And then well, you know, it's interesting for me again are similar. We have similars, but differences.

Terry Arnold: Look him.

Terry Arnold: I was told, at my diagnosis. I was going to die, so there was not. And I'm not a hopeless person, but I understood why they thought that. And so then, later, I had the opposite feeling of Oh, I might actually make it

Terry Arnold: now. So tell me about the treatment. What was that like.

Jane Kendrick: It was hard, it was hard, but

Jane Kendrick: I have a wonderful family and friend and church relationships, and.

Terry Arnold: Right.

Jane Kendrick: One of my my best friend lived in San Antonio, and she came up, and when I was diagnosed my hair was down to my waist.

Jane Kendrick: and.

Terry Arnold: Oh!

Jane Kendrick: Yes, and the oncologist said, I hate to tell you this, but you're going to lose your hair. And they said, we suggest you cut it short before it starts falling out. So it's not quite so traumatic. My girlfriend came up from San Antonio, took me to get a haircut.

Jane Kendrick: Another friend when she went to pay for it. Another friend had already paid for it.

Jane Kendrick: Then she took me to get hats and scarves.

Jane Kendrick: and then I had a friend drive down from Dallas

Jane Kendrick: to take me to Chemo one day.

Jane Kendrick: took me to Chemo, took me home, and then she drove back to Dallas. You know the people at our church brought food twice a week.

Jane Kendrick: And I have.

Terry Arnold: Wonderful.

Jane Kendrick: I had all my family support. My mother always had a big tub where all year long she would buy like little stuff, pick stuff up, and, you know, keep like a goodie box.

Jane Kendrick: And I was. I started chemo in November in December. I couldn't go shopping or anything. My mother brought her box to me, and I sat and did my Christmas shopping out of her box. Yeah.

Terry Arnold: That's so cool.

Jane Kendrick: So, you know, it's just, and and my family all came over to our house Christmas, and did all the cooking, and did everything. It was

Jane Kendrick: during that part of the treatment I was just so blessed.

Jane Kendrick: Oh, and I say this, I had a boss

Jane Kendrick: who was fabulous, and he told me.

Jane Kendrick: You come to work when you feel like it. You stay home. If you don't want to work, you will always have a full paycheck every week.

Terry Arnold: Oh, my goodness! That just makes me want to cry, because, you know so many people, they lose their jobs, and

Terry Arnold: I know I was fired when they looked at my diagnosis. I was up for a promotion, and they were like, We don't want to hold your. It's crazy, illegal, but it happens all the time. But I hear a lot of stories like yours where people do rally, and and I think

Terry Arnold: I don't know that we could put a price tag on what that means to us. When the people who physically show up

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Terry Arnold: on the ground, yeah, show up, drive you to the appointment, show up at your house with that with, you know I'm a Southern Catholic girl. Food is love, you know. Show up at your house with a casserole. You know what I mean?

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Jane Kendrick: I'm Baptist, and we do, too.

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Terry Arnold: Do the same thing. Well, there's a joke about a Baptist that you save the fork. It goes in the casket with you. Right.

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Terry Arnold: Be a potluck in heaven. Have you ever heard that joke?

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Terry Arnold: No, that's funny.

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Terry Arnold: Yeah, it's I think it's good to be a potluck in heaven just made me laugh. But I I don't think we realize, because we've become very virtual, especially since the pandemic

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Terry Arnold: of what it means to physically show up.

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Jane Kendrick: Yeah, and I've been blessed

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Jane Kendrick: to. Well, unfortunately, I have some friends who have had come down with cancer different kinds, but I've been blessed in that. I feel like I can do to them what people did for me, and I've got a friend who has breast cancer. I took her to Chemo a few times. I've got a male friend from church who had

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Jane Kendrick: colon cancer. I took him to his 1st chemo and sat with him.

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Jane Kendrick: and so I'm I feel like I can do that because I know what it means to me.

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Terry Arnold: It's true, and we can pay it forward because you never get to thank the people that helped you truly, but you can pay it forward for the next guy. And I think that's very important. Now, okay, listen. You mentioned the treatment was hard. How do you mean it was hard? Did you have pain, fatigue? Did you throw up.

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Jane Kendrick: You know. I never got

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Jane Kendrick: overly sick at my stomach because they were giving me all kind of medicine, but I didn't have any appetite. My husband had to kind of

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Jane Kendrick: forced me to eat.

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Jane Kendrick: I had no energy, I couldn't do anything.

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Jane Kendrick: I always laugh and remember. One time my husband came in the bedroom, and he said, Honey, you need to get up and change your nightgown. You've been in that same place for 3 days, you know, so.

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Terry Arnold: Oh, gosh!

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Jane Kendrick: Like. Oh, no, don't make me get up and do anything. I don't want to change clothes. I don't. I just want to lay here, you know, but you know he was always.

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Terry Arnold: Fatigue.

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Terry Arnold: the fatigue being a really big deal, I never always thought because of the movies they show people throwing up. I never once threw up, or even felt nauseous. But I remember I got bloated. I did the opposite of you. I overate and gained weight because all my friends could bring me these amazing meals, and I

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Terry Arnold: I couldn't taste anything, so I kept eating, wanting to taste something I wish I'd understood

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Terry Arnold: don't just make myself fatter, and that the taste would not be there. But,

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Terry Arnold: You know, I think we have a lot of misconceptions of what it's like, and and for me, the fatigue.

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Terry Arnold: Some people thought I was depressed. I wasn't depressed. I it was a fatigue I couldn't sleep off.

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Terry Arnold: Is that what it was like for you?

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Jane Kendrick: Yeah, what I did the week I would have chemo on Mondays every other week. And so the the week I had Chemo, I was basically in bed.

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Jane Kendrick: and then the next week I would pull myself up, and my husband would drive me to the office, and I'd work a couple hours, and then when I got tired, I'd call him, and he'd come get me. So I'd work, you know, a few days, just trying to make myself get up and do something. And then the next Monday I had Chemo, and we'd do the routine again.

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Jane Kendrick: And so you know, I did that all through Chemo.

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Terry Arnold: This is surgery like for you.

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Jane Kendrick: Oh, I had really large breasts, and it was really hard to

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Jane Kendrick: have it gone, and my my oncologist suggested that I not get reconstruction, because, she said, it's in the skin you need to be able to see the skin

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Jane Kendrick: and see that the problem I've got is then I had the chemo. Then I had a mastectomy. Then I had radiation.

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Jane Kendrick: The radiation has

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Jane Kendrick: just bound all of this together, and so it's just it's corded. It's hurts all the time, and so that part of it is always painful that that bothers me all the time.

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Jane Kendrick: It took me.

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Terry Arnold: I don't want that thumb. Did you see that? Just show up a thumbs up just showed up on the screen.

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Jane Kendrick: I did. I don't know where that Nope.

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Terry Arnold: Oh, well, I wasn't saying I like it that you got recordings.

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Terry Arnold: Are you still having that pain now?

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Jane Kendrick: Oh, yeah, it's it's a it's never gone away. Now. I will say this. It took me

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Jane Kendrick: a long time to be able to look at myself in the mirror.

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Terry Arnold: You know, I wanted to talk about that a little bit about body imaging, because you've got

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Terry Arnold: large breast, waist, length, hair

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Terry Arnold: 53 years 52 years old. People often think, oh, you're an older lady. You don't need

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Terry Arnold: rest, you know we in my head I'm 67. I think I'm 30.

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Jane Kendrick: At 52. You still want to feel attractive to yourself, to your husband. You want to look like yourself. Yeah. You probably felt like you were looking at a whole, another person in the mirror.

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Jane Kendrick: Oh, yeah. And like I said, I don't know the timeline, but I didn't look at myself for a long, long time, and I did get. I did get fitted before I had the surgery. I got fitted for a prosthesis.

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Jane Kendrick: I hated it. It was heavy.

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Terry Arnold: I hated him.

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Jane Kendrick: Uncomfortable pushing against my chest. Hurt.

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Jane Kendrick: I would wear it and come home. The 1st thing I'd do would be take it off.

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Jane Kendrick: I thought I, just I can't do this. But then the other side was so big.

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Jane Kendrick: you know, that I had had to do something. So what I ended up doing a couple years later was, just get a reduction

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Jane Kendrick: on this.

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Jane Kendrick: They took.

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Terry Arnold: Lot of women do that.

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Jane Kendrick: Took 4 pounds off, and I said.

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Terry Arnold: Isn't that shocking?

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Jane Kendrick: Oh, it is, and I still have, you know, some.

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Jane Kendrick: But the good thing is.

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Terry Arnold: How old are you?

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Jane Kendrick: 5, 1.

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Terry Arnold: See, because I can see, I can tell you're a petite person.

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Terry Arnold: Yeah.

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Terry Arnold: So here you are. But you know, that's the thing that was so weird for me was I was never overweight till cancer.

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Terry Arnold: My hair, which was long and straight, came back crazy, curly.

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Terry Arnold: and I was overweight. Both my breasts had to go because both had cancer.

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Terry Arnold: I just I would literally have people pass me in the grocery store and not even recognize me in my small town that knew me, and I'm thinking, Well, that's weird. And then I thought, Oh, they don't even recognize me.

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Terry Arnold: They're not snubbing me. They don't know who I am.

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Jane Kendrick: Yeah, it's

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Jane Kendrick: it's a it's different. And I said, Oh, you know, when all this is over I'll grow my hair back. Well, my sister said, now you want you're going to get used to it being short, and it's too easy, and she's right, and I never grow.

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Terry Arnold: Have a cute.

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Jane Kendrick: And then.

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Terry Arnold: Cute hairdo. Now, now, okay, not to make this about your husband, and not to get too intimate.

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Terry Arnold: because to me we need to be comfortable in our bodies for our own selves. But is there anything you want to say about the dynamic that it brought into your marriage, or what is it like for him to be a co-survivor? Because I feel like our partners are often very neglected, I know from my own experience maybe this wasn't yours if people rallied around me and my daughters, but they did not rally around my husband and my sons.

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Terry Arnold: and they were kind of

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Terry Arnold: push. This it was. It was sort of a girl party, and I'm like, No, I I

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Terry Arnold: you know, and you and I've been both married a long time. You know. You said you're coming up on how many years.

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Jane Kendrick: 53.

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Terry Arnold: 53. I love that. I'm coming up on 45. So what was it like

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Terry Arnold: taking care of yourself? But also I find that women are sort of the natural caregivers of the family, and now you're cared for.

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Jane Kendrick: Well, you know what.

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Terry Arnold: Talk about any of that.

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Jane Kendrick: We had an interesting dynamic in our house. My mother-in-law was living with us. She moved in

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Jane Kendrick: she was like early eighties.

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Jane Kendrick: and so she lived with us for like 15 years, and she was living with us at the time when I was diagnosed. She was 85. She could still do a lot of things, but then there were a lot of things she couldn't do, so my husband, bless his heart, was taking care of her and me.

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Terry Arnold: So he had already gotten the segue into what it was like to be a caregiver.

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Jane Kendrick: Yes, yes, and he was

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Jane Kendrick: the most awesome caregiver, and I sat down with him before we started all the chemo and I was joking. I said, boy, when you said for better or worse, you didn't think it was going to be this, and he said, I'm insulted. Of course I want to take care of you, and he was just the most compassionate caring person. Now, I'm gonna say this

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Jane Kendrick: think it was probably 2,006 or 7 Georgia Pacific

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Jane Kendrick: for one time only had a co-survivor contest.

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Jane Kendrick: where you wrote in a 50 word essay about a co-survivor, and they were going to honor co-survivors.

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Jane Kendrick: and I sat down and wrote it about it with me and my and my husband taking care of me and his mother, and we won part of that we won in the contest, and we got.

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Terry Arnold: Amazing.

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Jane Kendrick: We got an expense paid trip to Victory Junction outside of Greensboro, North Carolina. I can't remember how many. I think it was a total of 40 people, and they just treated us like royalty, and it was all to honor the co-survivors, and they've only done it that one time. But it was really awesome.

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Terry Arnold: Fantastic, because I really think we don't do enough to address the coast of virus, and I'm glad that he had that.

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Terry Arnold: I, my husband.

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Terry Arnold: I have. We have 5 children, and I always say he was my 6 not not, I mean, in a bad way. I spoiled him, rotten her whole married life. So it was a big shock that now

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Terry Arnold: I needed something.

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Terry Arnold: and but he really ponied up, and I didn't know how he would be, I wasn't sure. And but what the cool thing was because you said earlier we did a little pre-interview is how this has taken your life into places that you didn't expect that were for the good like with me and my husband.

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Terry Arnold: I got to see a part of him that I don't think I would have seen otherwise, and he became really my hero. He was pretty spoiled, but by my doing, not his, because I enjoyed it, and but he really ponied up?

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Terry Arnold: And so what were some of those hidden blessings along the way that you were sharing with me earlier?

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Terry Arnold: How do we have people see? Because, okay, the reason I'm asking this question.

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Terry Arnold: People say to me all the time, how do you have hope?

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Terry Arnold: And I spent a lot of time thinking about this, and I'd be curious what you think.

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Terry Arnold: Everything I can gather.

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Terry Arnold: All is born out of gratitude if we can develop gratitude.

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Terry Arnold: Hope is the next step in that.

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Terry Arnold: How do you feel about what you saw along the way? What were those, you know, those hidden blessings or lessons learned that you would want to share with somebody else.

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Jane Kendrick: Well, you know I told you everything happened so fast, and we, you know, we just didn't have time to think or anything.

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Jane Kendrick: When I finished everything, and in May of 2,000 2,004, when the doctor said, Oh, there's no evidence of disease, you know, but

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Jane Kendrick: but if it comes back it usually comes back more aggressive and resistant to Chemo.

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Jane Kendrick: So we're going to keep checking you, you know, like once, I think it was like once a week for a while, and then once every 3 weeks.

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Jane Kendrick: But then I just sat around. Then you're not doing anything. You're not fighting it, you know during chemo radiation, you're fighting. You're doing something now. Okay, you're well. Go on with your life and wait for the other shoe to fall.

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Jane Kendrick: and that's when I.

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Terry Arnold: To me was the hardest time.

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Terry Arnold: That's when I had

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Terry Arnold: that free falling. I just really melted down, going through treatment. I felt empowered. I was doing something, and they told me the same thing. You're any deep. If it comes back

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Terry Arnold: because of the way mine was, it's it's going to be nasty, and you gotta be. We've got to be ready. And that feeling, and also that I don't about you. But to go back to your old life. Did your old life change a lot.

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Jane Kendrick: Oh, absolutely. I just.

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Terry Arnold: My own life wasn't there anymore.

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Jane Kendrick: My my old life. Well, it was in that, you know, with my job and church and friends, you know, but but I felt different. I wasn't, you know. You didn't have the energy. You just were a different dynamic of your the way you moved and did everything. And

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Jane Kendrick: I went. I went to the oncologist one of those times after, you know, after treatment.

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Jane Kendrick: And

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Jane Kendrick: she said, Are you, you know? Are you depressed? Are you having any problems, and I just busted out crying, and she goes, well, I'm going to take that as a yes, you know. And so that's when everything changed. There's a group in Austin called Breast cancer Resource center, Bcrc, and I started going to a support group.

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Jane Kendrick: And that got me out of the you know. What do I do now?

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Jane Kendrick: And that was like another way of fighting, I guess.

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Jane Kendrick: And so I became involved with Bcrc. And met some wonderful people. And actually, in 2,017 and 18

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Jane Kendrick: I did something I would have never, ever, ever, ever dreamed I would do. I was an art bra model.

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Jane Kendrick: I walked a runway in a in a decorative bra and costume as a fundraiser in front of 600 people. I did that twice.

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Terry Arnold: Oh!

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Jane Kendrick: I would have never believed. But it was. It was so much fun, and it was like I became this whole different person.

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Jane Kendrick: and my.

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Terry Arnold: Interesting that, like I, I posed for a photo. You know. Both my breasts are gone. I pose for photo.

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Terry Arnold: showing my chest, and I would have never thought. You know I was never the Mardi Gras girl. Shall we say? Flashing? You know.

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Terry Arnold: easy.

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Terry Arnold: I was never that person, so I would have never thought. But you know I wanted people to see the scars. I wanted them to understand. I felt like it was very empowering, and also made it less scary because I think we are minds. To me truth is always less scary than where my mind can take me.

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Jane Kendrick: Right.

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Terry Arnold: Imagination is creepy.

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Terry Arnold: So if you tell me the real thing, I can handle that.

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Jane Kendrick: Yeah. So my at the time my my daughter-in-law was very artistic, and she wanted to make me a bra. It used to be, for it was the art. Bra was for younger, for young survivors, but then they opened it up to any age, and so she convinced me to do it, and she made a bra for me. That was just one side had one cup.

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Jane Kendrick: and it was the most exquisite it was. It was all handmade wired, and I was an Amazon warrior.

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Jane Kendrick: and they called me the war. It was the warrior within, and I was the 1st model they had ever had that only had one breast.

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Jane Kendrick: So you know it was just. It was. It was such a cool experience, and I remember afterwards my son came up to me, and he said, Mom, I'm so proud of you.

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Terry Arnold: Well, that is so cool. I love your family. I wanna be friends with you. We're gonna we don't live that far apart. We're gonna have to have lunch a lot.

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Jane Kendrick: I want to tell you that the other thing I got into was casting. Have you ever heard of casting for recovery?

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Terry Arnold: I love them. I've never done it myself, but I love them because I have a very dear friend, Amy. If you ever met Amy Pittman

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Terry Arnold: lives in Fort Worth.

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Jane Kendrick: Okay. I'm I'm not sure.

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Terry Arnold: Well, she's a little spitfire, and Amy was diagnosed a few years ahead of me at a quite young age, and she was one of the ones who literally took my hand and mentored me. I met her after I finished treatment, but that's when I needed her.

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Jane Kendrick: Because.

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Terry Arnold: That's when I was free falling, and she is a big casting recovery person, very involved with them. I'm sure you've been in the same place at the same time, and just didn't know each other's names.

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Jane Kendrick: Probably. Well.

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Terry Arnold: Have to get us together.

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Jane Kendrick: Oh, yeah. And I'm really involved in in Cfr, I we have. We start.

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Terry Arnold: Great organization. Tell people about casting for recovery. Let's do a little quick.

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Terry Arnold: Shout out for them.

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Jane Kendrick: Okay, they are awesome. And actually, I wrote down I was trying to find a brochure, and I don't know couldn't find it. So I wrote down what they said, their mission is, and this explains it. Their mission is to empower women in treatment or recovery from breast cancer through oncology, informed retreats. These retreats connect women to each other and to nature, using the therapeutic sport of fly fishing.

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Jane Kendrick: and it's all at no cost.

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Terry Arnold: They're a great organization. We recommend them all the time. So I'm excited that you have a good experience with them.

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Jane Kendrick: I love them. And actually, we started in Texas, I think about 12 years ago, I was actually in the second Cfr group they ever had in Texas.

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Terry Arnold: That's great!

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Jane Kendrick: And and we have a reunion

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Jane Kendrick: every year where people from any of the retreats can come and get together. And we it's just the most awesome experience. It's it's feeds my soul every year.

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Terry Arnold: I understand. And you know my first, st my favorite thing when I go to these annual events is when we get ready to do the goodbyes. It's my favorite thing to say to a cancer survivor is, see you next year.

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Jane Kendrick: Exactly to have.

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Terry Arnold: That something to look forward to see you next year. Now I want to hover a little bit. Be a little bit of a helicopter mom here about the pain that you've got in your chest.

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Jane Kendrick: Okay.

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Terry Arnold: I know when I

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Terry Arnold: had my breast removed it did the radiation. The skin adhered to the muscle.

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Terry Arnold: and my Ibc side. Both sides had a mastectomy, but my Ibc side they scooped me so deep I could literally lay my little fat hand in that well before it would be even

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Terry Arnold: with the other chest side.

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Terry Arnold: It just sucked in and adhered, and they released that for me. After many, many years.

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Terry Arnold: I didn't know it could be released. And I that's 1 of the few times I ever felt anger about what happened with me. I I think because I was misdiagnosed so long. I was just. I went into the gratitude mode so quickly, so I knew what was wrong with me, and I was having issues. I never had trouble with range of motion, but I had that shooting pain

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Terry Arnold: that you're describing that tightness.

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Terry Arnold: and it was very uncomfortable, and it would wake me up at night. I would have muscle spasms. Do you have that muscle spasms?

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Jane Kendrick: Spasms.

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Terry Arnold: I had muscle spasm. So anyway, I was saying something to a physical therapist one day, and he goes. You know, we can release that. And I'm like what

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Terry Arnold: I mean. I've been doing this for 10 years. We said anything. He goes, yeah, we could do a fat transfer. And I I thought they were told me no reconstruction, for the same reasons as you.

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Terry Arnold: and what they did. They took some fat from my tummy, and they injected it

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Terry Arnold: under the skin, and it made that puff out, and it was like the angel saying

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Terry Arnold: it was not a big deal.

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Terry Arnold: and it released that, and I could take a deep breath and not pull tight, and that was one of the 1st times I felt really angry. I said, I've been suffering with this, and nobody told me a fat transfer could change my life. They go. We just thought you knew about it, didn't want it. And I'm like.

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Jane Kendrick: Oh! Oh!

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Terry Arnold: I don't know if you want to look into it, but it it's not what I consider something really invasive. I mean in the sense that I mean it is a surgery, and there's anesthesia, but it's a quick, it's a quick thing.

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Terry Arnold: The worst thing about it was, they took fat from my thighs, I think, versus my tummy, and it's a it's a it's what do you call it? Liposuction, and if you've ever had liposuction, they bruise you the heck out of your legs, I mean, you think you've been a car wreck, so my legs are a little sore.

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Terry Arnold: But, my goodness, was it worth it, and it was a no big deal. And then that led me down a path to realize

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Terry Arnold: then, if I did get reconstruction because I have lymphedema, and we didn't discuss that now we did in our pre-interview. You don't have that issue. I have significant lymphedema. So I end up getting reconstruction.

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Terry Arnold: So they could do no transfers lymphedema. But it'd be interesting for you to go back and visit with someone about some of the newer developments.

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Terry Arnold: because in the last 4 years there's been some significant changes about what they give us, that porting that maybe hasn't been offered to you.

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Jane Kendrick: Yeah.

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Terry Arnold: Knew.

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Jane Kendrick: I've you know, when I've had massages, you know, they've talked about how you know they to try to release it, you know, and they can work on it. But it's just so impacted, right, you know, and has been for 20 years. Now that

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Jane Kendrick: you know it's I don't know if it's past.

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Terry Arnold: They told me that I was not the oldest patient they had done it on. They had done it on patients much older than me, but they told me that I was the patient that had the longest.

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Terry Arnold: that they normally didn't offer to patients with people that had it that long, and they said, But we're willing to take you on. We think you're a good candidate. And they said, Now they're offering it.

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Terry Arnold: This is an Md. Anderson. So I thought that was something interesting. Since you're kind of local, might be worth looking into. I can give you some resources.

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Jane Kendrick: Okay.

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Terry Arnold: We have a fellow we've done a podcast with. I'll send you that. His name is Mark Miller. He's a physical therapist at Md. Anderson, who specializes in Ibc.

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Jane Kendrick: Oh!

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Terry Arnold: Cording. No, you know the no massages, all that. And so that might be someone for you to think about. If it's still a problem.

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Jane Kendrick: Okay.

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Jane Kendrick: And it is so, you know.

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Terry Arnold: It is, and and that's it. There's the. There's that new normal.

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Jane Kendrick: And then.

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Terry Arnold: It's hard to know what is a new normal that we can accept versus what is a new normal. We need to be working on

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Terry Arnold: changing.

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Jane Kendrick: I feel like my body is lopsided because of the way I've had to carry myself, you know. And now I'm having back problems. And when I stand up it looks like I have a boob down here, and it's my rib cage, you know it.

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Jane Kendrick: It's just, you know you just deal with it. It's it is what it is.

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Terry Arnold: Well, our bodies do get a little wonky, and I know, especially with women like you, that are busty, the back problems. And and that little thing you're talking about underneath your breast. That's I refer to as a rib roll. You know our breasts are a counterweight, and when there's no counterweight

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Terry Arnold: your ribs kind of pitch forward, and it makes you look different. And

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Terry Arnold: like, I said, That's what about? How do we feel good

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Terry Arnold: and recognize ourselves and go forward.

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Terry Arnold: and I know some women don't ever have the luck we had that the treatment doesn't work.

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Jane Kendrick: Right.

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Terry Arnold: But I think there's something that could be said about me's and use who make it. We can advocate for the others. You participate in a fundraiser. We can share a message. We can share hope.

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Terry Arnold: and we can be. We can amplify the voices of the others who are struggling.

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Jane Kendrick: That's what I just.

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Jane Kendrick: I kind of feel like all the odds were against me to start with. And then I've had some health issues not related to cancer. But I've had, you know, health issues along the way. And

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Jane Kendrick: one of my friends said, My body is a lemon, and I've had all these different issues. But then I'm still here.

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Jane Kendrick: and so I feel like God has taken me in this path to go do

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Jane Kendrick: different things. And so I like helping people. I've always enjoyed helping people, and

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Jane Kendrick: I have a an 87 year old friend from church. Dear, dear, dear lady, who last year was was diagnosed with breast cancer.

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Jane Kendrick: And so she and I talk all the time. And so I feel like I can help people, you know, if they know that you can still manage and go on. And, my friend, she was going to have a mastectomy. I asked her, I said, would you like to see my scar, and she said Yes, and so I showed her, and she said, That's not what I thought it was going to be, you know. So

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Jane Kendrick: I just like to help people.

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Terry Arnold: I understand, and I'm I'm I'm definitely of that mindset. And again, when she said, That's not what I thought it'd be. I bet you a dollar. Her imagination made it much more scary.

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Jane Kendrick: Yeah, even my mother. Afterward, after the mastectomy, she said, I want you to show it to me, so I know what it's like, so I don't have to guess, you know.

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Jane Kendrick: So we had a. We had a lady at Cfr. She's passed away now, but

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Jane Kendrick: she had reconstruction, and she had the most beautiful tattoo I have ever seen in my life. Her whole side was tattooed. Beautiful flower! It was just gorgeous.

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Jane Kendrick: and all you had to do was say, have you seen Candy's tattoo? Whoop up with the shirt.

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Terry Arnold: I had a funny story, but different than that I was going to. I had a whole bunch of appointments one day Dmd. Anderson, and there was many days. I was there for a whole 12 h and and it was the beginning, and like I said, I was never the Mardi Gras girl showing my body, and then

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Terry Arnold: I was walk. I walked into this physical therapy department, and they pulled the curtain, and there was a gown on the table, and I assume they wanted me to change. And the guy goes, Mrs. Arnold, we're running really late, and if we don't do this quickly. You're gonna miss your next appointment. This will throw everything off, and so we gotta get cracking here. And I just like and strip off my clothes. He turns around goes, ma'am. I was only gonna interview you.

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Terry Arnold: Click what.

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Jane Kendrick: Oh, no. Okay.

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Terry Arnold: Okay. Why are we in a room with a curtain and a gown? He goes. Well, I do need you to change in a minute, I said, well, let's don't be weird about this on chop, chop.

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Jane Kendrick: How funny! Oh, my! Gosh!

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Terry Arnold: Anyway. But we have had our moments.

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Jane Kendrick: Oh, yeah, you know.

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Terry Arnold: You know I'm really grateful that you shared all this wonderful support of your family and your friends.

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Terry Arnold: and that you're here to tell the tale, and

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Terry Arnold: and and you're giving me hope.

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Jane Kendrick: So I appreciate that.

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Jane Kendrick: Well, you're welcome. I'm I

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Jane Kendrick: I I'm typically very shy. But I said Chemo burned up something in my brain. That was the shyness. And now I just rattle on and talk and do everything.

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Terry Arnold: I think sometimes hardship. I don't say that cancer defines you.

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Terry Arnold: but I think that hardship can reveal you. It can reveal an inner strength and inner character that maybe we just didn't have a chance to show before.

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Jane Kendrick: Yeah, maybe.

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Terry Arnold: What is your parting words as we wrap this up? And I'm so delighted you were with me to hear today.

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Jane Kendrick: Thank you, and and I will say I will get my sister to bring me down to visit you sometime.

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Terry Arnold: I will get in the car as soon as you say I would love to visit. It'd be great to see you in person. Give you a hug. I hope you tell people at the Ibc network. I want to share stories of hope. I also want to share the hard stories, too, because we need each other.

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Jane Kendrick: Absolutely. And and I'm not the only longtime Ibc survivor or you in our Cfr retreats. There are 2 other ladies who are like 20 year survivors, so.

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Terry Arnold: Would love to chat with them.

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Jane Kendrick: We're out there, and I've had doctors who were going to do something for me, and they said, I've never treated an Ibc patient before. You know they get all excited. I've never had somebody like this to treat, so

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Jane Kendrick: we're all out there, and still plugging and living life to the fullest when.

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Terry Arnold: Glad to hear it.

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Terry Arnold: So you know.

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Terry Arnold: Well, I think that's a great place to stop right there, that there is life after cancer. There is hope with this.

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Terry Arnold: and I wish the ones of you who are listening on a podcast go over to the Youtube because. You got to see this lady smile. Okay.

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Terry Arnold: thank you for being with us today. Jane.

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Jane Kendrick: Oh, thank you. I will talk to you soon, hopefully.

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Terry Arnold: Yes, yes, ma'am, I would love that.

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Jane Kendrick: Okay. Bye-bye.